Thursday, February 10, 2011

The sound of scissors,the great green room and why the pants have to be just right


You don't understand. Hell i don't REALLY understand..well some days i do but most days i don't.
I cannot just BUY anything for my son The Rock.It has to be JUST right . As in Goldilocks and the 3 bears porridge just right. His pants have to hit right at the ankle, so i cannot buy them to big , he cant stand to feel the pants touch the top of his foot so i usually have to put his socks on first then pants. The pants MUST be soft movable and cannot be restrictive. He hates anything with a hood unless the wind is blowing really bad and then he will only wear it till he makes inside at which point it is immediately stripped off. He will FINALLY after almost a year in the trying, wear a shirt with a collar IF its super soft cotton or organic.
 He spends 90 % of his time at home in his birthday suit because well... to him clothes are a suggestion not necessary. He doesn't care WHAT character is on the article of clothing or shoes that makes no emotional plea to him nor make him want to put it on any more than he has too.
Coats are out of the question. Jeans must be as thin as possible. He likes thermal pajamas because they fit snug to the body providing what i suspect is some sort of slight compression which he in general enjoys. He will often approach me and ask me to do squeeze, which is what we do when he is upset feels ungrounded or is acting erratic.
He stays awake most nights till 11pm if not later, propelling himself with self stimulation, toe walking and constant movement to stay awake. BTW its the only time he toe walks anymore-when he is tired or if he is on concrete he will too.
All tags must be cut out.
Any hanging strings unnerve him.
He has never had his hair cut by anyone but me and that is an interesting experience in and of itself because the sound of scissors makes him cringe.
we end all nights with me reading him what he calls the great green room.
Not goodnight moon.
no
The great green room, where he stops to count the 3 little bears sitting on chairs
and watches me intently for the end of the story because i then say goodnight to several objects in the room and last its goodnight to him.
There are 500 steps to everything i do with him, and they cannot be avoided changed missed or excluded.
They require patience precision and endurance.
This is not for the weak.
Autism /pdd-nos it really doesnt matter
He is still my son
Goodnight
s.o.t.d.
God says in James 1:2 to consider it joy when we encounter trials. Notice that God does not say if but when.

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